These prayerscapes are offered in the hope they might be helpful for those who struggle with prayer as their lives are somewhat muted and dimmed by chronic illness. They have grown out of my own experience of struggling with prayer during the many years I have lived with myalgic encephalomyelitis/chronic fatigue syndrome. I hope they might be helpful now to others with similar illnesses; as well, to those who deal with a chronic disability or with a life difficulty that persists, despite efforts to resolve it.
*****
Who am I, God?
And what is the meaning of my life…
with this absence of longed-for activity?
with this restless, unwelcome stillness?
with this inability to bolster self-esteem through accomplishments?
My bones cry out with all they have been taught: that meaning comes
with doing,
with producing,
with busy-ness, activity, accomplishments.
Help me, I pray,
to experience something of your Presence in what often feels like Absence,
to learn new ways to look at my life and find richness in these restrictions,
to believe your eternal gaze of love affirms my life with or without “accomplishments,”
to believe that you cherish me, not for what I “do,” but simply because I “be,”
to find joy in giving thanks for the many graces tucked among the many challenges,
to hear your invitation to rest in the mystery of my life, the mystery of Who You are,
to believe that, in everything, you do indeed work to bring about good.
Amen.
*****
Where are you, God?
And who are you?
Where and who are you in all the wars and ecological disasters around the world?
Where and who are you in the corridors of children’s hospitals where little ones are suffering and dying before they’ve even had a chance to live?
Where and who are you in the limits that have confined my life and the lives of all who live with a chronic or prolonged illness or difficulty?
Have you forgotten us, O God?
Or is it the case that you are simply hidden from our human eyes in “light inaccessible,”* in light that surrounds the majesty and mystery of your eternal reality?
I do not know all the answers.
Yet, in spite of the pain of this unknowing, help me to trust, to believe the promise of your Word:
that the arms of Jesus stretched in love upon the cross are your arms reaching for us,
that on that cross you suffered and overcame the full power of evil in the human body of your Son,
that on that cross you shared the pain of our fragile lives when suffering overwhelms,
that you embrace us in those times when we cry out with Jesus, “my God, my God, why have you forsaken me?”
that your arms reach to help us find a measure of healing even in all of our un-wellness,
that your arms reach out in resurrection hope and promise that evil and suffering will never have the final say in our lives or in our world.
O God, I do believe. Please help my unbelief.
Amen
*from the hymn “Immortal, Invisible, God Only Wise” Walter C. Smith (1867)
*****
Will this ever be over, God?
Days come when I dare to hope for a medical breakthrough
or a miraculous divine intervention,
but today is not one of them;
today despair hovers in the very air I breathe;
the sun rises, but its rays seem dark, foreboding.
Will this ever be over, God?!
Can I hope for richer, fuller days of vibrant aliveness and activity,
or is this “it”?
As I pour out my complaint, God, a quiet inner voice urges me–
to find a measure of equanimity
in acknowledging and accepting my despair;
to know that you do not judge me for my dark,
despairing moments;
to learn to “think small,” and find a measure of joy in accomplishing
little, sometimes even tiny goals;
to be mindful of the richness of each moment,
each task, no matter how insignificant it might seem;
to open space within me for new understandings,
new ventures for my mind and soul.
Creator of my life, hold close my darkness,
surround, undergird my fragile life
in your everlasting arms.
Amen.
*****
*****
Sing me Joy, Spirit God,
you who took on human flesh
to know our woes, share our pain,
help me know that I am seen,
accepted,
understood.
Companion me, Lord Christ,
that I may share your joy—
despite my disappointments,
sometime loneliness and pain—
in all the wonders of this world.
Remind me of your promise ever
to be with me
in all the twists and turns
of my chronic life,
to love me ever
even when I find it hard
to love myself.
JOY! Fill my chronic cup
to overflowing, gracious God.
Amen.